OUR MOONS

OUR MOONS
LORELEI MOON, ISABELLA MOON, ANNABETH MOON

02 March 2012

Life on the line

Oh Annabeth! I am so sorry you have to go through any of this. I just read the doctors report and during your endoscopy you almost died several times under anesthesia, and during your MRI they had several complications with your breathing tube. They have put so many iv's in you your body hurts. My heart aches for you. You are the strongest most patient baby in the world. Since we have brought you home life has been hell. In the hospital they have you on prevacid and Elecare formula, its a non dairy non soy formula and the prevacid is supposed to get the puss out of your tummy. So since I still give you as much breastmilk as possible which isnt much I have to be dairy free too. Now getting you the formula has been the hardest thing ever. You are going to run out of food sunday. Walgreens is trying to get medicaid to cover it.Your local gastro doctor will not write a prescription and he mis diagnosed you and told us you vomiting blood was completely normal and to just add rice cereal to your bottle. He is very anygry that we went to Sutter hospital and had an endoscopy that he didnt request and the very well known pediatric gastrologist at Sutter was very upset that you had not been to the hospital sooner and that you have the worst case of gastritis he has ever seen in anyone let alone a baby. Currently your daddy is unable to go back to his very good job because we need medicaid and wic to cover your doctor appts and formula. However now you are not going to get the proper medical attention you need in Nevada because Nevada has a monopoly on pediatric specialists. So we are looking into foreclosing on our home or short saleing or something so we can move to south lake so you can get the proper medical insurance for your disablity that Nevada will not recognize. California will help you live and thrive and give all sorts of services that you need. So pray baby that we can somehow get out of our homeloan do to medical reasons and then we can move so you can live and get the proper medical attention since Nevada is not doing it. I need you and I love you. Ever since you have been on this formula and medication you are thriving you dont puke and you have gained over a pound already. We did notice that when we were in California you did not have any breathing problems and as soon as we got back home in Nevada you had breathing problems again. So that is another issue we have here too its like you are allergic to sand or something lol I dont know but your amazing pediatrician will check you out on wednesday. Please stay with us please be patient with me and your daddy we will get you to a home that you can live happily in. We just have to be smart about it, your Auntie Michelle is going to hopefully find some fine print in our mortgage paperwork that we can get out of here. Just hold on sweet baby girl and keep fighting. I love you my love my sweet baby butt my cuddle muffin my giant shinning full moon just hold on tight and mama will get you help.

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